We’re having a bad day today. No hypos, thankfully, but Rudi’s sugar hit an ultimate high today. 33. I cursed a bit, especially since we had such a great day yesterday. But that’s diabetes for you; a constant rollercoaster of wins and not-so-wins.
A week ago we also had an extraordinarily bad day. Thankfully we have a lovely paediatrician who is available to us on WhatsApp any day. If he is off duty, he would immediately refer us to one of his partners on duty. With sugar readings just above and just below twenty, my nerves we’re exhausted. When I finally put the kid to bed for his afternoon nap in hopes of a miracle, he threw up. That’s when I started panicking. I contacted the doctor first. Secondly, I added cotton balls to his diaper to check for the dreaded ketones, to which he tested positive. >rolling eyes over here< We ended up rushing to the doctor. It happened to be an infection of some sort which caused the sky-high readings and we received a plan-of-action sliding scale which hit the spot.
Rudi is still a little unwell with a bad cough and runny nose, so we accept it like that. We followed the POA scale and things calmed a bit down. But what do you do – emotionally – on a day like today?
Keep calm (or pretend you are in anyways)
You can’t afford to run around waving your hands looking like you’re in a colourful parade in Mexico or somewhere exotic. Breathe. It is what it is.
Follow the instructions
Find advice that works for you and stick to the plan. Don’t just randomly try different things you quickly googled or overheard in a conversation. Discuss all new ideas and suggestions with your doctor to get an opinion.
Show your child some extra love
In hour case, our 2-year-old does not necessarily even know he has diabetes. But he picks up on our vibes and can certainly tell when his quick check’s result was not exactly what mommy and daddy would have wanted it to be. I am sometimes scared he thinks it might be his fault when he sees the worried look on faces so I make an effort to hug him and ask him if he is feeling ok. Like I said, I don’t think he even realises he has a disease!
Don’t blame yourself
I do this! I take ever sugar reading very personally and always feel it is something I did wrong. Be it a snack or a failed injection or whatever. Don’t do that! It is not making the situation any better and you don’t deserve the down-talk when you are already feeling a little shitty.
Remember the good days
I try and think of the good days. Since Rudi was diagnosed we have been keeping a chart of his readings and a food diary that accompanies it. When we hit bad days we often go back to his file and scroll through and point out the good ones. The severity of today made us realise how well things have been going and comparing it we noticed there has been a spike as high. And we overcame and nearly have forgotten about that. So keep a diary of the good days too!
As T1D parents we need to stay positive at all times. Sure, we are constantly stressing about our children’s wellbeing and things are not always rose petals and moonshine. But remind yourself you are doing what you feel is right even when things are not always the way you want them to be. Hang in there, I feel you xxx